MALATTIE RARE 2020 – Forum del Sistema Salute

Con più di 200 partecipanti in 30 squadre, al via la quarta edizione del Rare Disease Hackathon – la prima digitale

Con più di 200 partecipanti in 30 squadre, al via la quarta edizione del Rare Disease Hackathon – la prima digitale

E’ partito con eccezionale partecipazione di sfidanti e squadre la quarta edizione del Rare Disease Hackathon, la prima in forma digitale.

Da oggi le squadre stanno […]

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COMITATO SCIENTIFICO DEGLI STATI GENERALI DELLE MALATTIE RARE 2020

COMITATO SCIENTIFICO DEGLI STATI GENERALI DELLE MALATTIE RARE 2020

A. Scopinaro, C. Berni, D. Ciofi, P. Facchin, F. Gabbrielli, G. Limongelli, D. Massai, M. Pani, S. Papa, G. Piccinocchi, D. Taruscio, A. Villani

Questi i […]

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Stati generali delle malattie rare, 5 novembre su Klive.it – Grande partecipazione

Stati generali delle malattie rare, 5 novembre su Klive.it – Grande partecipazione

Gli stati generali delle malattie rare si terranno il 5 novembre 2020 su piattaforma digitale KLive .

L’obiettivo è discutere il documento di cambiamento nella cura […]

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STATI GENERALI DELLE MALATTIE RARE – PLENARIA

STATI GENERALI DELLE MALATTIE RARE – PLENARIA

Nei giorni 1 e 2 Ottobre si sono tenuti i tavoli di lavoro tra associazione dei pazienti e stakeholders su argomenti rilevanti per un nuovo […]

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Si sono conclusi i Tavoli preliminari degli #StatiGenerali delle #MalattieRare

Si sono conclusi i Tavoli preliminari degli #StatiGenerali delle #MalattieRare

Si sono conclusi venerdì 25 Settembre i Tavoli preliminari degli #StatiGenerali delle #MalattieRare ospitati dal Forum Sistema Salute| Leopolda digital edition 2020.

Formazione, terapie […]

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IMPRESE DEL FARMACO E MALATTIE RARE

IMPRESE DEL FARMACO E MALATTIE RARE

<span data-mce-type="bookmark" style="display: inline-block; width: 0px; overflow: hidden; line-height: 0;" class="mce_SELRES_start"></span><span data-mce-type="bookmark" style="display: inline-block; width: 0px; overflow: hidden; [...] </p> </div> </div> <div class="fusion-meta-info"> <div class="fusion-alignleft"> <a href="https://forumdellaleopolda.it/19276-2/" class="fusion-read-more"> Continua a leggere </a> </div> </div> </div> </div> </article> <article id="post-19252" class="fusion-post-grid post fusion-clearfix post-19252 type-post status-publish format-standard has-post-thumbnail hentry category-coronavirus category-mr2020"> <div class="fusion-post-wrapper"> <div class="fusion-flexslider flexslider fusion-flexslider-loading fusion-post-slideshow"> <ul class="slides"> <li> <div class="fusion-image-wrapper" aria-haspopup="true"> <img width="512" height="285" src="https://forumdellaleopolda.it/wp-content/uploads/2020/07/rare-diseases-400x223.jpg" class="attachment-full size-full wp-post-image" alt="" srcset="https://forumdellaleopolda.it/wp-content/uploads/2020/07/rare-diseases-200x111.jpg 200w, https://forumdellaleopolda.it/wp-content/uploads/2020/07/rare-diseases-400x223.jpg 400w, https://forumdellaleopolda.it/wp-content/uploads/2020/07/rare-diseases.jpg 512w" sizes="(min-width: 1200px) 25vw, (min-width: 2200px) 100vw, (min-width: 1056px) 327px, (min-width: 984px) 436px, (min-width: 912px) 654px, (min-width: 840px) 912px, " /> <div class="fusion-rollover"> <div class="fusion-rollover-content"> <h4 class="fusion-rollover-title"> <a href="https://forumdellaleopolda.it/covid-19-per-malati-rari-garantito-laccesso-ai-farmaci-ma-oltre-meta-ha-difficolta-per-visite-e-controlli/"> COVID-19, PER MALATI RARI GARANTITO L’ACCESSO AI FARMACI MA OLTRE METÀ HA DIFFICOLTÀ PER VISITE E CONTROLLI </a> </h4> <a class="fusion-link-wrapper" href="https://forumdellaleopolda.it/covid-19-per-malati-rari-garantito-laccesso-ai-farmaci-ma-oltre-meta-ha-difficolta-per-visite-e-controlli/" aria-label="COVID-19, PER MALATI RARI GARANTITO L’ACCESSO AI FARMACI MA OLTRE METÀ HA DIFFICOLTÀ PER VISITE E CONTROLLI"></a> </div> </div> </div> </li> </ul> </div> <div class="fusion-post-content-wrapper"> <div class="fusion-post-content post-content"> <h2 class="entry-title fusion-post-title"><a href="https://forumdellaleopolda.it/covid-19-per-malati-rari-garantito-laccesso-ai-farmaci-ma-oltre-meta-ha-difficolta-per-visite-e-controlli/">COVID-19, PER MALATI RARI GARANTITO L’ACCESSO AI FARMACI MA OLTRE METÀ HA DIFFICOLTÀ PER VISITE E CONTROLLI</a></h2> <div class="fusion-content-sep sep-double sep-solid"></div> <div class="fusion-post-content-container"> <h2>L’epidemia di Covid-19, oltre ad aver messo sotto pressione i reparti di terapia intensiva di molti ospedali italiani, ha avuto qualche ripercussione anche su diversi […]</p> </div> </div> <div class="fusion-meta-info"> <div class="fusion-alignleft"> <a href="https://forumdellaleopolda.it/covid-19-per-malati-rari-garantito-laccesso-ai-farmaci-ma-oltre-meta-ha-difficolta-per-visite-e-controlli/" class="fusion-read-more"> Continua a leggere </a> </div> </div> </div> </div> </article> <article id="post-19185" class="fusion-post-grid post fusion-clearfix post-19185 type-post status-publish format-standard has-post-thumbnail hentry category-mr2020"> <div class="fusion-post-wrapper"> <div class="fusion-flexslider flexslider fusion-flexslider-loading fusion-post-slideshow"> <ul class="slides"> <li> <div class="fusion-image-wrapper" aria-haspopup="true"> <img width="2500" height="1308" src="https://forumdellaleopolda.it/wp-content/uploads/2020/07/linkedin-400x209.jpg" class="attachment-full size-full wp-post-image" alt="" srcset="https://forumdellaleopolda.it/wp-content/uploads/2020/07/linkedin-200x105.jpg 200w, https://forumdellaleopolda.it/wp-content/uploads/2020/07/linkedin-400x209.jpg 400w, https://forumdellaleopolda.it/wp-content/uploads/2020/07/linkedin-600x314.jpg 600w, https://forumdellaleopolda.it/wp-content/uploads/2020/07/linkedin-800x419.jpg 800w, https://forumdellaleopolda.it/wp-content/uploads/2020/07/linkedin-1200x628.jpg 1200w, https://forumdellaleopolda.it/wp-content/uploads/2020/07/linkedin.jpg 2500w" sizes="(min-width: 1200px) 25vw, (min-width: 2200px) 100vw, (min-width: 1056px) 327px, (min-width: 984px) 436px, (min-width: 912px) 654px, (min-width: 840px) 912px, " /> <div class="fusion-rollover"> <div class="fusion-rollover-content"> <h4 class="fusion-rollover-title"> <a href="https://forumdellaleopolda.it/quale-cambiamento-nelle-malattie-rare-dopo-il-covid-sinergie-tra-pazienti-e-imprese/"> QUALE CAMBIAMENTO NELLE MALATTIE RARE DOPO IL COVID: SINERGIE TRA PAZIENTI E IMPRESE </a> </h4> <a class="fusion-link-wrapper" href="https://forumdellaleopolda.it/quale-cambiamento-nelle-malattie-rare-dopo-il-covid-sinergie-tra-pazienti-e-imprese/" aria-label="QUALE CAMBIAMENTO NELLE MALATTIE RARE DOPO IL COVID: SINERGIE TRA PAZIENTI E IMPRESE"></a> </div> </div> </div> </li> </ul> </div> <div class="fusion-post-content-wrapper"> <div class="fusion-post-content post-content"> <h2 class="entry-title fusion-post-title"><a href="https://forumdellaleopolda.it/quale-cambiamento-nelle-malattie-rare-dopo-il-covid-sinergie-tra-pazienti-e-imprese/">QUALE CAMBIAMENTO NELLE MALATTIE RARE DOPO IL COVID: SINERGIE TRA PAZIENTI E IMPRESE</a></h2> <div class="fusion-content-sep sep-double sep-solid"></div> <div class="fusion-post-content-container"> <p>Il <strong>23 Luglio ore 10:00 – 11:30</strong> si terrà un webinar di lavoro in preparazione degli “<strong><a href="https://forumdellaleopolda.it/stati-generali-delle-malattie-rare-dopo-il-covid/).">Stati generali delle malattie rare</a>“</strong> che si svolgeranno […]</p> </div> </div> <div class="fusion-meta-info"> <div class="fusion-alignleft"> <a href="https://forumdellaleopolda.it/quale-cambiamento-nelle-malattie-rare-dopo-il-covid-sinergie-tra-pazienti-e-imprese/" class="fusion-read-more"> Continua a leggere </a> </div> </div> </div> </div> </article> <article id="post-19132" class="fusion-post-grid post fusion-clearfix post-19132 type-post status-publish format-standard has-post-thumbnail hentry category-mr2020"> <div class="fusion-post-wrapper"> <div class="fusion-flexslider flexslider fusion-flexslider-loading fusion-post-slideshow"> <ul class="slides"> <li> <div class="fusion-image-wrapper" aria-haspopup="true"> <img width="1406" height="788" src="https://forumdellaleopolda.it/wp-content/uploads/2020/07/Schermata-2020-07-01-alle-12.12.47-400x224.png" class="attachment-full size-full wp-post-image" alt="" srcset="https://forumdellaleopolda.it/wp-content/uploads/2020/07/Schermata-2020-07-01-alle-12.12.47-200x112.png 200w, https://forumdellaleopolda.it/wp-content/uploads/2020/07/Schermata-2020-07-01-alle-12.12.47-400x224.png 400w, https://forumdellaleopolda.it/wp-content/uploads/2020/07/Schermata-2020-07-01-alle-12.12.47-600x336.png 600w, https://forumdellaleopolda.it/wp-content/uploads/2020/07/Schermata-2020-07-01-alle-12.12.47-800x448.png 800w, https://forumdellaleopolda.it/wp-content/uploads/2020/07/Schermata-2020-07-01-alle-12.12.47-1200x673.png 1200w, https://forumdellaleopolda.it/wp-content/uploads/2020/07/Schermata-2020-07-01-alle-12.12.47.png 1406w" sizes="(min-width: 1200px) 25vw, (min-width: 2200px) 100vw, (min-width: 1056px) 327px, (min-width: 984px) 436px, (min-width: 912px) 654px, (min-width: 840px) 912px, " /> <div class="fusion-rollover"> <div class="fusion-rollover-content"> <h4 class="fusion-rollover-title"> <a href="https://forumdellaleopolda.it/la-voce-dei-malati-rari-in-italia/"> LA VOCE DEI MALATI RARI IN ITALIA </a> </h4> <a class="fusion-link-wrapper" href="https://forumdellaleopolda.it/la-voce-dei-malati-rari-in-italia/" aria-label="LA VOCE DEI MALATI RARI IN ITALIA"></a> </div> </div> </div> </li> </ul> </div> <div class="fusion-post-content-wrapper"> <div class="fusion-post-content post-content"> <h2 class="entry-title fusion-post-title"><a href="https://forumdellaleopolda.it/la-voce-dei-malati-rari-in-italia/">LA VOCE DEI MALATI RARI IN ITALIA</a></h2> <div class="fusion-content-sep sep-double sep-solid"></div> <div class="fusion-post-content-container"> <div class="fusion-title title fusion-title-size-one"></div> <div class="fusion-text"> <h2 data-fontsize="20" data-lineheight="30">Anche nell’ambito delle malattie rare, la pandemia ha segnato un punto di svolta. Il dopo Covid-19 si presenta come un […]</p> </div> </div> <div class="fusion-meta-info"> <div class="fusion-alignleft"> <a href="https://forumdellaleopolda.it/la-voce-dei-malati-rari-in-italia/" class="fusion-read-more"> Continua a leggere </a> </div> </div> </div> </div> </article> <article id="post-19113" class="fusion-post-grid post fusion-clearfix post-19113 type-post status-publish format-standard has-post-thumbnail hentry category-mr2020"> <div class="fusion-post-wrapper"> <div class="fusion-flexslider flexslider fusion-flexslider-loading fusion-post-slideshow"> <ul class="slides"> <li> <div class="fusion-image-wrapper" aria-haspopup="true"> <img width="1024" height="512" src="https://forumdellaleopolda.it/wp-content/uploads/2020/06/vi-rapporto-malattie-arre-400x200.jpeg" class="attachment-full size-full wp-post-image" alt="" srcset="https://forumdellaleopolda.it/wp-content/uploads/2020/06/vi-rapporto-malattie-arre-200x100.jpeg 200w, https://forumdellaleopolda.it/wp-content/uploads/2020/06/vi-rapporto-malattie-arre-400x200.jpeg 400w, https://forumdellaleopolda.it/wp-content/uploads/2020/06/vi-rapporto-malattie-arre-600x300.jpeg 600w, https://forumdellaleopolda.it/wp-content/uploads/2020/06/vi-rapporto-malattie-arre-800x400.jpeg 800w, https://forumdellaleopolda.it/wp-content/uploads/2020/06/vi-rapporto-malattie-arre.jpeg 1024w" sizes="(min-width: 1200px) 25vw, (min-width: 2200px) 100vw, (min-width: 1056px) 327px, (min-width: 984px) 436px, (min-width: 912px) 654px, (min-width: 840px) 912px, " /> <div class="fusion-rollover"> <div class="fusion-rollover-content"> <h4 class="fusion-rollover-title"> <a href="https://forumdellaleopolda.it/19113-2/"> </a> </h4> <a class="fusion-link-wrapper" href="https://forumdellaleopolda.it/19113-2/" aria-label=""></a> </div> </div> </div> </li> </ul> </div> <div class="fusion-post-content-wrapper"> <div class="fusion-post-content post-content"> <h2 class="entry-title fusion-post-title"><a href="https://forumdellaleopolda.it/19113-2/"></a></h2> <div class="fusion-content-sep sep-double sep-solid"></div> <div class="fusion-post-content-container"> <div class="feed-shared-actor__image relative" data-control-id="P1nIspb1QeSOsVxKmEP/9A==" data-control-name="actor_picture"> <div id="ember4820" class="feed-shared-actor__avatar ivm-image-view-model ember-view"> <div id="ember4821" class="display-flex ivm-view-attr__img-wrapper ivm-view-attr__img-wrapper--use-img-tag ember-view"> <div id="ember4902" class="presence-entity presence-entity--size-3 ember-view"><img id="ember4903" class="ivm-view-attr__img--centered EntityPhoto-circle-3 feed-shared-actor__avatar-image presence-entity__image EntityPhoto-circle-3 lazy-image [...] </p> </div> </div> <div class="fusion-meta-info"> <div class="fusion-alignleft"> <a href="https://forumdellaleopolda.it/19113-2/" class="fusion-read-more"> Continua a leggere </a> </div> </div> </div> </div> </article> </div> </div> </section> <aside id="sidebar" role="complementary" class="sidebar fusion-widget-area fusion-content-widget-area fusion-sidebar-right fusion-blogsidebar" style="float: right;" > </aside> </div>  </main>  <div class="fusion-footer"> <footer id="footer" class="fusion-footer-copyright-area fusion-footer-copyright-center"> <div class="fusion-row"> <div class="fusion-copyright-content"> <div class="fusion-copyright-notice"> <div> Forum Sistema Salute® - 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